tag:blogger.com,1999:blog-4828879467490478491.post1475949000265610687..comments2023-05-31T10:46:19.766-05:00Comments on It Is Not My Shame to Bear: Please Pray For UsNotMyShametoBearhttp://www.blogger.com/profile/07679891969349514369noreply@blogger.comBlogger50125tag:blogger.com,1999:blog-4828879467490478491.post-71370658017657637052017-04-06T11:35:43.461-05:002017-04-06T11:35:43.461-05:00Unfortunately, he had an abnormal EEG several year...Unfortunately, he had an abnormal EEG several years earlier that I had practically been begging the doctors to look into. But because he wasn't physically displaying seizure signs (that we knew of), no one would investigate it. :( <br /><br />But, onward and upward is right!NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-11282686347351531392017-03-31T10:10:10.248-05:002017-03-31T10:10:10.248-05:00I am writing as a medical professional who works w...I am writing as a medical professional who works with individuals with developmental disabilities.<br /><br />It is very hard to diagnose a seizure disorder in the absence of witnessing a seizure. Sometimes people with seizure disorders have normal EEGs. EEGs are only a snapshot of the brain activity at the moment. The specialists you wanted to see may have done extensive testing and still not caught the seizure disorder. There is no way to know for sure if he was having seizures all along.<br /><br />Please do not bury yourself in recriminations. You know what's happening now. All you can do is keep moving from this moment, onward.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-22167511939142716322017-03-28T18:28:17.456-05:002017-03-28T18:28:17.456-05:00It's good to remember that things change, and ...It's good to remember that things change, and change is OK :)<br /><br />*HUGS*NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-74907230049061116232017-03-28T18:27:55.310-05:002017-03-28T18:27:55.310-05:00It's very much appreciated!
*hugs*It's very much appreciated!<br /><br />*hugs*NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-62102381120020336782017-03-28T18:27:38.975-05:002017-03-28T18:27:38.975-05:00Love ya girl!!Love ya girl!!NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-26174831343101937772017-03-28T18:27:30.366-05:002017-03-28T18:27:30.366-05:00I personally think that if we had been able to see...I personally think that if we had been able to see a quality doctor earlier, that we would have found this before it progressed to this point. But, you never really know :)<br /><br />*hugs*NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-29744333591496206802017-03-28T18:26:21.166-05:002017-03-28T18:26:21.166-05:00You are much too sweet, thank you!
*hugs*You are much too sweet, thank you!<br /><br />*hugs*NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-9972819201522275132017-03-28T18:26:06.840-05:002017-03-28T18:26:06.840-05:00Thank you Steven :)
*hugs*Thank you Steven :)<br /><br />*hugs*NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-60853050230671710402017-03-28T18:25:54.288-05:002017-03-28T18:25:54.288-05:00Thank you!!
*hugs*Thank you!!<br /><br />*hugs*NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-77868336026533546802017-03-28T18:25:40.830-05:002017-03-28T18:25:40.830-05:00Ha! I would be lying if I said that I wasn't c...Ha! I would be lying if I said that I wasn't considering it... because you are very right about the drugs :(<br /><br />And welcome from lurkdom! I hope you stay and visit for a while!!<br /><br />*hugs*NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-73581420927931201052017-03-28T18:24:33.574-05:002017-03-28T18:24:33.574-05:00Aw, thank you Carey!Aw, thank you Carey!NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-57313084290766625692017-03-28T18:24:22.508-05:002017-03-28T18:24:22.508-05:00Thank you so much Carolyn :)
*hugs*Thank you so much Carolyn :)<br /><br />*hugs*NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-81556020042779103032017-03-28T18:24:04.136-05:002017-03-28T18:24:04.136-05:00Im sorry to hear about your son, the things these ...Im sorry to hear about your son, the things these boys put us through!NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-69914320134014403272017-03-28T18:23:42.577-05:002017-03-28T18:23:42.577-05:00So far, he has a pretty good track record of getti...So far, he has a pretty good track record of getting me through, so I will trust and pray for the same this time around!NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-59790761180838394622017-03-28T18:23:10.764-05:002017-03-28T18:23:10.764-05:00I am definitely looking into that diet! I was fair...I am definitely looking into that diet! I was fairly familiar with it before his diagnosis, so I'm even more interested now!<br /><br />I'm very sorry to hear about your granddaughter. She is lucky to have such a caring family :)<br /><br />*hugs*NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-75198011969401596312017-03-28T18:22:01.471-05:002017-03-28T18:22:01.471-05:00Thank you Debbie!Thank you Debbie!NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-53434685022228244402017-03-28T18:21:48.042-05:002017-03-28T18:21:48.042-05:00Thank you Dawn :)
*hugs*Thank you Dawn :)<br /><br />*hugs*NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-70292793921367988362017-03-27T16:43:20.168-05:002017-03-27T16:43:20.168-05:00I think that you should not look for him in the wa...I think that you should not look for him in the way you dreamt the first time you hold him. He is never going to be that person. Instead: find him here and now and try to enjoy what he is with all his medical issues.<br />Just, don’t keep yourself in a wishful thinking of what it could be. That will drain your energy of what it is and what it must be done and who he can be. You sure are strong, so keep your faith up and go on.<br />I think you are a great mother and he is lucky to have you. I will pray for you and your family. I´m sure that there is a difficult path you are going to walk, but I’m confident you can do it. Bubahttps://www.blogger.com/profile/16863724301706918502noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-86652832723616328092017-03-25T03:52:43.059-05:002017-03-25T03:52:43.059-05:00The new insurance lady at the neurologist has been...The new insurance lady at the neurologist has been awsome. She got medicaid to cover a sleep study (they said 16, hes 13). Told them if him or I got hurt from me trying to carry him because he sleepwalks when hes getting a migraine, she would find us a lawyer to sue for our medical bills. He gets his on Thursday. Tonsils we have been trying to get out for 6 years are happening over Easter.<br /><br />Im beginning to think she has blackmail on someone at tbe medicaid office but Im just glad to finally have some helpAnonymoushttps://www.blogger.com/profile/06210269126065570871noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-26067252080184427982017-03-24T22:05:00.852-05:002017-03-24T22:05:00.852-05:00Medicaid will be the death of me. Goodluck finding...Medicaid will be the death of me. Goodluck finding any good doctors in a decent time frame or within hours of my reach.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-72494111843670464812017-03-24T19:55:58.463-05:002017-03-24T19:55:58.463-05:00I fight with medicaid every single week over my so...I fight with medicaid every single week over my sons migraines. Luckily, his neurologist just got assossiated with a teaching hospital and there is now a lady 4 doctors share that her entire job is arguing with medicaid (and sometimes other insurance, but mostly medicaid). My son has head testing done since Jan Ive been fighting for years trying to getAnonymoushttps://www.blogger.com/profile/06210269126065570871noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-29197573926266477392017-03-24T08:03:14.902-05:002017-03-24T08:03:14.902-05:00Oh and for the waiting list part, I was told by a ...Oh and for the waiting list part, I was told by a major university hospital that medicaid patients are rolled to the bottom and private insurance patients take priority, so it is a real thing.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-26507814029274529962017-03-24T08:00:20.752-05:002017-03-24T08:00:20.752-05:00I think it probably depends in where you live. I&#...I think it probably depends in where you live. I'm on medicaid and my healthcare is crap. You either have to drive two hours to find someone who takes it, or get stuck on a waiting list that never seems to move. The doctors who can see me right away never speak English or are so bad they take medicaid because no privately insured person would want to see them, so it's not very helpful.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-16856534199932362812017-03-24T01:41:39.789-05:002017-03-24T01:41:39.789-05:00Agree with the medicaid part... Its really not as ...Agree with the medicaid part... Its really not as dramatic & awful as described in postAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-22416566053156199682017-03-23T13:53:55.905-05:002017-03-23T13:53:55.905-05:00I will keep your little one and your family in my ...I will keep your little one and your family in my prayers. Hang in there, YOU ARE VERY STRONG!! Anonymousnoreply@blogger.com