tag:blogger.com,1999:blog-4828879467490478491.post5226421213018365600..comments2023-05-31T10:46:19.766-05:00Comments on It Is Not My Shame to Bear: Please Don't Tell Me I'm Losing My SonNotMyShametoBearhttp://www.blogger.com/profile/07679891969349514369noreply@blogger.comBlogger32125tag:blogger.com,1999:blog-4828879467490478491.post-61039419431465444292017-05-17T18:57:44.088-05:002017-05-17T18:57:44.088-05:00Thank you Jennifer! I am absolutely looking into i...Thank you Jennifer! I am absolutely looking into it. I've heard great things about the Charlotte's Web type.<br /><br />*hugs*NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-74409953997597019552017-05-17T18:56:50.533-05:002017-05-17T18:56:50.533-05:00Thank you! I love hearing everyone's opinions....Thank you! I love hearing everyone's opinions.<br /><br />*hugs*NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-28701703016608731982017-05-17T18:56:07.553-05:002017-05-17T18:56:07.553-05:00Thank you Carolyn, that means a lot to me.
*hugs*...Thank you Carolyn, that means a lot to me.<br /><br />*hugs*NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-22918891132623495052017-05-17T18:55:42.487-05:002017-05-17T18:55:42.487-05:00I wonder that as well; already made an appointment...I wonder that as well; already made an appointment with the geneticist! Great minds think alike :)NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-5782698233021009532017-05-12T15:45:38.399-05:002017-05-12T15:45:38.399-05:00You don't mention Cannabidoil and while I'...You don't mention Cannabidoil and while I'm sure you've researched every option I thought I'd throw it out there just in case as I know some parents have found great relief for their children with it.<br /><br />http://www.epilepsy.com/learn/treating-seizures-and-epilepsy/other-treatment-approaches/medical-marijuana-and-epilepsyJennifer Znoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-28013778720436229662017-05-11T13:19:08.645-05:002017-05-11T13:19:08.645-05:00I am so sorry you and your son are going through t...I am so sorry you and your son are going through this! I second the keto diet. As a pediatric nurse, I have seen several cases of intractable seizure disorders responding so well to it. Hugs and prayers.debrapaigehttps://www.blogger.com/profile/01461432776652182160noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-78283570877620340972017-05-05T11:19:32.883-05:002017-05-05T11:19:32.883-05:00Oh wow. So so sorry to hear your struggles (and th...Oh wow. So so sorry to hear your struggles (and the fact you never got to fully utilize your family vacation). Prayers continue for a family I've never met, but feel I do, because of your beautiful writing. Carolyn DeNeuthttps://www.blogger.com/profile/01305300889649139476noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-51117652017874771052017-05-04T16:44:36.487-05:002017-05-04T16:44:36.487-05:00This sucks so much! You just have not gotten a bre...This sucks so much! You just have not gotten a break! I wonder if your son may be one of the unfortunate ones who have multiple genetic diseases- maybe he has an epilepsy condition which is causing the seizures? I read an article today about how different medications can be used for different seizure conditions and it helps to know the cause, so maybe going to see your friendly neighborhood geneticist for some epilepsy genetic testing would be worthwhile?Louisehttps://www.blogger.com/profile/09778068030676163121noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-84534512950276147972017-05-03T09:53:58.830-05:002017-05-03T09:53:58.830-05:00You are too kind, thank you for being such a great...You are too kind, thank you for being such a great cheerleader <br /><br />*hugs*NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-84348289779711452882017-05-03T09:53:17.474-05:002017-05-03T09:53:17.474-05:00So very true! There is no hurt quite like that of ...So very true! There is no hurt quite like that of feeling your children's pain :( <br /><br />Thank you so much for your words of encouragement and prayers. They really do mean a lot to me!NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-80625524879385119272017-05-03T09:52:26.387-05:002017-05-03T09:52:26.387-05:00YOU !!! So, I got the most BEAUTIFUL letter in the...YOU !!! So, I got the most BEAUTIFUL letter in the PO Box! Oh my TEARS! You are absolutely amazing! Email me so I can thank you some more :)NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-35359482230908735872017-05-03T09:51:44.955-05:002017-05-03T09:51:44.955-05:00I actually have an appointment with his doc next w...I actually have an appointment with his doc next week, to look into the keto diet! :) Thank you so much for your prayers :)NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-89405956014524697722017-05-03T09:50:40.474-05:002017-05-03T09:50:40.474-05:00Jenny, I will send up some prayers for you. We wil...Jenny, I will send up some prayers for you. We will get through this!NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-3269317548647990572017-05-03T09:49:46.137-05:002017-05-03T09:49:46.137-05:00You are right, we are not always privileged to kno...You are right, we are not always privileged to know why things happen, but I'm keeping the faith!NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-57074170247501842932017-05-03T09:48:10.359-05:002017-05-03T09:48:10.359-05:00Thank you Debbie, I will take all the wishes, vibe...Thank you Debbie, I will take all the wishes, vibes, and near-prayers that I can get!NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-70838656017536861092017-05-02T22:04:01.393-05:002017-05-02T22:04:01.393-05:00My heart and prayers go out to you and your family...My heart and prayers go out to you and your family. The dignity and grace you continue to show are so amazing. You have support in ways that aren't always right in front of you but I promise they are there. Virtual hugs - sues2u2https://www.blogger.com/profile/08393950748230547758noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-24049851604982399002017-05-02T16:27:03.420-05:002017-05-02T16:27:03.420-05:00I am so sorry your baby is sick. Please, please lo...I am so sorry your baby is sick. Please, please look up cannabis/cannabis oil for the treatment of epilepsy. I swear I'm not a pothead, I'm actually a nursing student and this is a subject we've discussed frequently. I personally know people that have used CBD successfully to treat their medical conditions. Check out Ricky Ricki Lake's movie Weed The People - The Movie for more information. Also, this is a great article by a parent of a child with epilepsy that has been helped tremendously by CBD. It's from 2015 and a bit long, but has loads of useful information. https://www.wired.com/2015/07/medical-marijuana-epilepsy/Facebooknoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-74955724003728571242017-05-02T14:41:27.505-05:002017-05-02T14:41:27.505-05:00Our personal struggles dull in comparison to our c...Our personal struggles dull in comparison to our childrens. We would give our lives to take their pain from them. I think you are feeling what we all would & you are working through the emotions beautifully. There is a great work being done in your life & there is purpose in every situation you have faced. I'll be praying for you all. You are an awesome woman. Your family is blessed to have you as their mom/wife.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-70343431892258020812017-05-02T14:04:37.989-05:002017-05-02T14:04:37.989-05:00Off to read it now. 💛Off to read it now. 💛Instagramnoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-21841468399235502152017-05-02T14:04:16.758-05:002017-05-02T14:04:16.758-05:00I read the latest. Words aren't enough.I read the latest. Words aren't enough.Instagramnoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-22723378858678384922017-05-02T14:03:36.909-05:002017-05-02T14:03:36.909-05:00Dr. Mark Richardson Did my uncle's Surgery.Dr. Mark Richardson Did my uncle's Surgery.Facebooknoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-29369251265174269592017-05-02T14:02:59.728-05:002017-05-02T14:02:59.728-05:00Oh my God. I have no idea what to say. I'll be...Oh my God. I have no idea what to say. I'll be praying for you all.Facebooknoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-49072424134608044672017-05-02T14:02:39.769-05:002017-05-02T14:02:39.769-05:00Heaven bless you all and give you enough stamina t...Heaven bless you all and give you enough stamina to get through this also.Facebooknoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-13791962232276695882017-05-02T14:02:06.242-05:002017-05-02T14:02:06.242-05:00Wow.....you already have enough on your plate....I...Wow.....you already have enough on your plate....I wish I could just slap the spoon out of the hand that keeps adding more and more pain and worry on you like the cafeteria lady trying to get rid of the last pan of tuna surprise casserole that no one will eat. Sending you prayers and love.Facebooknoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-71957943563563509362017-05-02T14:01:46.468-05:002017-05-02T14:01:46.468-05:00My heart is breaking for you Eden...I wish I had s...My heart is breaking for you Eden...I wish I had some words of wisdom that could make this easier for you. You are so very strong and tough and more then equipped for any challenges that life throws at you. Please continue to be strong and know that all of us are always here for you! Continuing to send love and lots of healing thoughts your way. You can do this!Facebooknoreply@blogger.com