tag:blogger.com,1999:blog-4828879467490478491.post7220356804189421379..comments2023-05-31T10:46:19.766-05:00Comments on It Is Not My Shame to Bear: I Felt REALLY HighNotMyShametoBearhttp://www.blogger.com/profile/07679891969349514369noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-4828879467490478491.post-68913976896973701572016-10-18T22:32:45.765-05:002016-10-18T22:32:45.765-05:00Party!! Woot woot!!Party!! Woot woot!!NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-8380192907811083692016-10-18T22:32:33.036-05:002016-10-18T22:32:33.036-05:00Sounds like you have an amazing mom!! I really hop...Sounds like you have an amazing mom!! I really hope that one day my daughter looks back on this "experience" as fondly as you do :) I'm trying my best!NotMyShametoBearhttps://www.blogger.com/profile/07679891969349514369noreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-80541141960584848002016-10-16T11:34:58.219-05:002016-10-16T11:34:58.219-05:00I would join that party!I would join that party!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-42242965617877024262016-10-16T11:34:19.633-05:002016-10-16T11:34:19.633-05:00I read the article on yahoo and I actually saw ton...I read the article on yahoo and I actually saw tons of comments from people with disabilities supporting her decision. I don't think she's "hiding" anything as much as not being as upfront as an adult to adult might be. I myself have a disability and my parent's made the same choice as the author did and I'm glad they did. It let me carve out my own way without limitations and I think I went a lot further than I would have otherwise. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-71071618219614912092016-10-15T21:39:59.336-05:002016-10-15T21:39:59.336-05:00I hope you really do pay attention to the comments...I hope you really do pay attention to the comments on the article about your daughter's health condition. You not telling her that the therapy appointments are to help maintain and not improve-- that's a part of hiding what her prognosis is. The course of her condition, the fact that it doesn't stay stagnant... That's hiding it. She needs to know. <br /><br />I was younger then her when I found out that eventually I'd need a wheelchair and I knew that eventually I would get weaker. I've been using wheelchairs since I was a little over 6, and while I changed dreams, that doesn't mean that I'll never be able to fly. A wheelchair and any other things that she may have to deal with in the future-- things I've probably already dealt with as I've just turned 20-- it doesn't affect the ability to fly. Knowing one's prognosis isn't taking anything away but instead giving power to someone who needs it the most when society says those very opposite things to her. That she won't be able to x, that she'll likely be x by x, and so much more. Even things that you may believe she won't be able to do but she'll prove to you that she can. The people who have disabilities and similar conditions commenting, they're doing it from the heart so that she doesn't have to go through many of the horrifying stories that are so common in the disability and illness/disorder community. Bless. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-39272167969053409862016-10-14T16:23:33.339-05:002016-10-14T16:23:33.339-05:00I wish I lived closer to you so we could hang out!...I wish I lived closer to you so we could hang out!Facebooknoreply@blogger.comtag:blogger.com,1999:blog-4828879467490478491.post-5867784564542802862016-10-14T13:36:29.768-05:002016-10-14T13:36:29.768-05:00In middle school my mom served detention with me. ...In middle school my mom served detention with me. She worked a job where she never knew if she was going to be able to pick me up that day or not, so everyday I walked out of homeroom (the last period of the day) and had to look for her when all the kids were released to get on the buses. If she was there I got in the car with her, if she wasn't I got on the bus. Well, my teacher noticed and made an issue out of it because I should have turned around and come back into the classroom instead of just getting in the car. She gave me 3 days lunch detention. My mom showed up all three days and we played Othello until it was over then she took me to lunch. I'm in my 30's now and it is one of the best memories I have from middle school. That teacher never did get over it and gave me an F in homeroom and I didn't care and I knew no one else would ever care either. It was one of those first moments as a teen that I realized through anything my mom had my back. I'm sure your daughter will cherish it the same way. Thank you Eden.Anonymoushttps://www.blogger.com/profile/10639814469888646745noreply@blogger.com